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The development and validation of the Epilepsy and Learning Disabilities Quality of Life (ELDQOL) scale

Buck, Deborah; Smith, Monica; Appleton, Richard; Baker, Gus A. and Jacoby, Ann (2007) The development and validation of the Epilepsy and Learning Disabilities Quality of Life (ELDQOL) scale. Epilepsy & Behavior, 10 (1). pp. 38-43. ISSN 1525-5050

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Abstract

Few suitable instruments exist for use with people, especially children, with both epilepsy and learning disabilities. One such measure is the Epilepsy and Learning Disabilities Quality of Life scale (ELDQOL), which has recently undergone revision following feedback from relevant users. This paper reports on the final psychometric testing phase of ELDQOL. ELDQOL consists of 70 items covering seizure severity, seizure-related injuries, AED side-effects, behaviour, mood, physical, cognitive and social functioning, parental concern, communication, overall QOL and overall health. Revalidation involved a qualitative phase to ascertain users’ opinions on the wording, coverage and layout of the questionnaire; and a quantitative phase to examine internal consistency and test-retest reliability, and validity. The final version of ELDQOL has very good evidence of reliability and validity, making it a promising instrument for assessing QOL in children/young adults with epilepsy and learning disability.

Item Type:Article
Additional Information:Available online 28 November 2006. Issue: February 2007.
Uncontrolled Keywords:epilepsy; children; learning disabilities; quality of life; carer; assessment
Subjects:R Medicine > RA Public aspects of medicine
Departments, Research Centres and Related Units:Academic Faculties, Institutes and Research Centres > Faculty of Medicine > School of Population, Community & Behavioural Sciences
DOI:10.1016/j.yebeh.2006.10.010
Refereed:Yes
Status:Published
ID Code:1125
Deposited On:10 Mar 2009 09:53
Last Modified:04 Apr 2013 17:11

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