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Quality of life of people with epilepsy in Iran, the Gulf and Near East

Baker, Gus; Jacoby, Ann; Gorry, Joanne; Doughty, Julie and Ellina, Veronica (2005) Quality of life of people with epilepsy in Iran, the Gulf and Near East. Epilepsia, 46 (1). pp. 132-140. ISSN 1528-1167 (Online); 0013-9580 (Print)

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Official URL: http://www.blackwell-synergy.com

Abstract

Purpose: To study the impact of epilepsy and it’s treatment in on the quality of life of people living in Iran and in countries in the Gulf and Near East. Methods: Clinical, demographic, psychosocial details were collected through the use of a self-completed questionnaire distributed to patients attending hospital outpatient clinics. Results: Data were collected from 3,889 people with epilepsy from 10 countries. Over 40% of all respondents had frequent seizures; and reported levels of side effects from medication were high, the most commonly reported being nervousness, headaches and tiredness. A significant number of respondents reported changing their medication, because of side effects or poor seizure control. Respondents reported that epilepsy and its treatment had a significant impact on a number of different aspects of their daily lives. A significant number of respondents felt stigmatised by their epilepsy. Reported health status was reduced when compared to people without epilepsy particularly for physical and social functioning and energy and vitality, as assessed using a generic health status measure, the SF-36. Conclusions: This is the largest study to date documenting the impact of epilepsy and its treatment in Iran, the Gulf and Near East regions. There were differences between the QOL profiles of respondents in this study and those who participated in an earlier parallel study in Europe.

Item Type:Article
Additional Information:Issue Date: January 2005. Full citation: Gus A. Baker, Ann Jacoby, Joanne Gorry, Julie Doughty, Veronica Ellina. 'Quality of Life of People with Epilepsy in Iran, the Gulf, and Near East' Epilepsia, 46, 1, 132-140, 2005, 1528-1167, 0013-9580. University Department of Neurosciences, Walton Centre for Neurology and Neurosurgery; Department of Primary Care, University of Liverpool, Liverpool, United Kingdom; Centre for Health Service Research, University of Newcastle Upon Tyne, United Kingdom; GlaxoSmithKline, Cyprus; SIGN Group Physicians in the Ten Countries Studied DOI: 10.1111/j.0013-9580.2005.20704.x http://dx.doi.org/10.1111/j.0013-9580.2005.20704.x
Uncontrolled Keywords:epilepsy; quality of life; impact; Gulf and Near East regions; WELL-CONTROLLED EPILEPSY; SF-36 HEALTH SURVEY; PUBLIC-ATTITUDES; NORMATIVE DATA; STIGMA; ADULTS; EMPLOYMENT; IMPACT; KNOWLEDGE
Subjects:R Medicine > R Medicine (General)
R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Departments, Research Centres and Related Units:Academic Faculties, Institutes and Research Centres > Faculty of Medicine > School of Clinical Sciences
Academic Faculties, Institutes and Research Centres > Faculty of Medicine > School of Population, Community & Behavioural Sciences
DOI:10.1111/j.0013-9580.2005.20704.x
Publisher's Statement:The definitive version is available at www.blackwell-synergy.com. 'Epilepsia: The Journal of the International League Against Epilepsy'. Blackwell Publishing, Inc. © 2005 International League Against Epilepsy.
Refereed:Yes
Status:Published
ID Code:266
Deposited On:12 Aug 2008 14:42
Last Modified:03 Apr 2012 09:11

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